Facebook Digital Support Groups

The groups are closed Facebook groups. This means that anyone can see the group and who is in it but only members can post and see posts. Anyone can add members to this group but only administrators (admin) can approve these members.

The administrators of this group are Bone Cancer Research Trust staff and volunteers.

This group is owned by the Bone Cancer Research Trust. We would respectfully request that fundraising requests for charities or causes other than the Bone Cancer Research Trust are not posted in this group and we reserve the right to remove these posts.

To prevent ‘spammers’, admin will use their discretion when approving new members.

As one of the purposes of the group, the Bone Cancer Research Trust will inform you of our services and activities that you may find useful.

The views and opinions expressed on this group are those of the authors and do not necessarily reflect the views and opinions of the Bone Cancer Research Trust. Advice received via the group is for general guidance purposes only. No steps should be taken solely as a result of guidance provided on the group. Appropriate professional advice should be sought before any course of action is pursued.

If you have an urgent medical inquiry, we recommend that you contact your GP, call 111 or in the event of an emergency, call 999 or attend A&E (UK members).

This group will be monitored and moderated by administrators who are members of staff or volunteers of the Bone Cancer Research Trust. This moderation is not available 24/7, however unsuitable posts will be removed in a timely manner.

We encourage all members of this group to self-moderate and be conscious of their posts, replies and the feelings of others.

Anyone deemed not to be a genuine user of the group for support purposes may be removed from the group without consultation.

If you have concerns about any of the posts on the Facebook group, please report the post or contact the lead administrator for the group.

Moderation will cover the following topics; however, we reserve the right to evaluate each incident on a case by case basis:

Personal abuse

Personal abuse - or negative posts (flames/trolls) towards other members will not be tolerated in the Facebook Group. Abusive messages will be deleted without consultation. Consistent criticism of a person’s comments or views will be seen as abuse. Initial offenders can expect to be issued with a warning then a permanent ban if they continue to flout these rules. Please respect the opinions of others even if you disagree.

Language

Foul language/swearing, or aggressive language is prohibited.

Quoting

When quoting from other sources, please ensure that you quote only the section of the source on which you are commenting. Any posts that fail to meet this requirement may be removed. If you would like to make the full quote available to the group, please include the link.

Spam/Advertising

The group is intended to be a forum for discussion. Articles posted without context to promote discussion may be considered spam/advertising and removed from the group. Posts deemed to be irrelevant or unsuitable for the group may be removed.

Attribution (the source of the content)

When providing information from other sources please give references or add links to the health/medical information you are quoting. When the information provided is from your own personal experience, we respectfully ask that you make this clear within your post.

Alternative Treatments

Grandiose claims relating to ‘cure’ / ‘miracle’ alternative treatments are prohibited. This includes, but is not limited to, statements related to Cannabidiol (CBD) or personal lifestyle choices.

Images/Photographs

It is the responsibility of all group members to protect their own privacy and we would ask that you are mindful of this. Under no circumstances are pictures of a pornographic nature permitted. We accept no responsibility for images hosted external to the Bone Cancer Research Trust. Please note that it is an offence to make copies of an illegal image. Please report any concerns about images/videos or contact the lead administrator who will deal with this situation appropriately.

Justifiability

All users must post information which is true and correct to the best of their knowledge.

The Bone Cancer Research Trust would advise that you do not accept any friend requests from people you do not know as this will give them access to your private information. Please be aware of your privacy settings on Facebook and set them to a level that you are comfortable with.